The Bumpy Bone Club

You know a lot about what MHE means. You know what it's like to have bumpy bones. You know about going to the doctor and having X-rays. Maybe you've never had to have an operation, or maybe you've had lots. Maybe your arm is bumpy, maybe your leg...maybe both. Maybe you only have a few bumps, or maybe you have lots. Maybe you can run okay, but maybe you can't run at all and maybe you even have trouble walking sometimes. MHE affects different kids in different ways. But did you know that MHE affects something besides your bones? It can also affect the way you feel. You might feel like you're the only one in the world who has bumpy bones. You may feel like none of the kids in your school will understand what MHE is. You might be embarrassed for people to see your bumps or scars. You might feel sad that you can't play sports or run as fast as other kids. You might feel like nobody understands you and that you're all alone... but you are not alone!   There are kids from all over the world with MHE who face the same problems. They get sad, mad, happy, afraid... They've shared many of the same experiences you have.  It can feel really great to make a new friend who understands just how you feel, so...come on in and join THE BUMPY BONE CLUB.  If you'd like to have a page of your own, just email Susan at mheandme@yahoo.com. Consent by parent or guardian is required for children under 13 (MHE and Me Parental Consent Form).

BUMPY BONE STORIES

Conor Joe Nic Bobby Amanda Avery Reanna Brittni Tamra Briana Frances Aimee Victoria Jake

TEEN SCENE Nicole Jessica Mandy Jessi Mikey Elizabeth Renee Rachel

Monica Alexandra Kornel (updated 10/31/07) Amy Chloe Breanna Rose Will Zachary Mercy Blake - New Page!

Tina Emmon Dawn Jeni Jodie Emily

POETRY

Theresa Jessica  -  new poem Frances

Nicole's new poem- Chris Jessi

Mandy Chloe Breanna Rose

Essays

"An Angel Taught Me a Lesson" by Jessica, 13 "At the Hospital" by Amy, 13

The Bumpy Bone Club Art Gallery

Drawings by kids throughout the world who are affected by MHE.  Many of these drawings appear on Cards from the Heart, notecards sold to benefit The MHE Coalition.  Visit the Art Gallery.   Nicole's new drawings on living with MHE - Oct 2006

What is MHE? Students who either have MHE or have family members with it have been researching and writing school papers about the disorder that affects their lives.  Some share there efforts with us here.

MHE (Multiple Hereditary Exostoses) by Lisa, 6th Grade Multiple Hereditary Exostoses by Jake, 7th Grade Multiple Hereditary Exostoses by Nicole, 7th Grade Multiple Hereditary Exostoses by Jessica, 9th Grade Multiple Hereditary Exostoses by Shannan, College Freshman Anatomy Paper

The Bumpy Bone Club Questions & Answers

Read what other kids have to say about things like having operations, funny things that have happened to them because of their bumpy bones, teasing, and more.  f you'd like to have your comments posted, just send your answers to me at mheandme@yahoo.com, and just make sure to let me know which number question you're answering!        To:   Bumpy Bone Q&A   (Updated Feb 20, 2005)

MHE Word Games

Rachel's Word Search and Acrostic Poem

Page updated June 20, 2008