|You know a lot about what MHE means. You know what it's like to have bumpy bones. You know about going to the doctor and having X-rays. Maybe you've never had to have an operation, or maybe you've had lots. Maybe your arm is bumpy, maybe your leg...maybe both. Maybe you only have a few bumps, or maybe you have lots. Maybe you can run okay, but maybe you can't run at all and maybe you even have trouble walking sometimes. MHE affects different kids in different ways.
But did you know that MHE affects something besides your bones? It can also affect the way you feel. You might feel like you're the only one in the world who has bumpy bones. You may feel like none of the kids in your school will understand what MHE is. You might be embarrassed for people to see your bumps or scars. You might feel sad that you can't play sports or run as fast as other kids. You might feel like nobody understands you and that you're all alone... but you are not alone! There are kids from all over the world with MHE who face the same problems. They get sad, mad, happy, afraid... They've shared many of the same experiences you have. It can feel really great to make a new friend who understands just how you feel, so...come on in and join THE BUMPY BONE CLUB.
If you'd like to have a page of your own, just email Susan at email@example.com. Consent by parent or guardian is required for children under 13 (MHE and Me Parental Consent Form).
|BUMPY BONE STORIES|
Kornel (updated 10/31/07)
Brooks - New Page!
Christopher - New Page
Jack - New Page
Erin - New Page
Eitan - New Page
Jodie (Updated 9/15/08)
|Nicole's new poem-
Jessica - new poem
|"An Angel Taught Me a Lesson" by Jessica, 13
"At the Hospital" by Amy, 13
|The Bumpy Bone Club Art Gallery|
|Drawings by kids throughout the world who are affected by MHE. Many of these drawings appear on Cards from the Heart, notecards sold to benefit The MHE Coalition. NEW! Drawings by kids at the Midwest and Northeast Gatherings, August 9, 2008. Visit the Art Gallery - Gathering Pages.|
|What is MHE?
Students who either have MHE or have family members with it have been researching and writing school papers about the disorder that affects their lives. Some share there efforts with us here.
|MHE (Multiple Hereditary Exostoses) by Lisa, 6th Grade
Multiple Hereditary Exostoses by Jake, 7th Grade
Multiple Hereditary Exostoses by Nicole, 7th Grade
Multiple Hereditary Exostoses by Jessica, 9th Grade
Multiple Hereditary Exostoses by Shannan, College Freshman Anatomy Paper
|The Bumpy Bone Club Questions & Answers|
|Read what other kids have to say about things like having operations, funny things that have happened to them because of their bumpy bones, teasing, and more. f you'd like to have your comments posted, just send your answers to me at firstname.lastname@example.org, and just make sure to let me know which number question you're answering! To: Bumpy Bone Q&A (Updated Feb 20, 2005)|
|MHE Word Games|
|Rachel's Word Search and Acrostic Poem|
|Page updated March 22, 2010|