Different
I feel lonely, in a black shadow.
I see people who are not like me.
I feel different, they feel the same.
Who is kind, who's to blame.
I understand I'm not like anyone else.
I'm like a star in the sky.
I'm as slow as time passing by.
I have my world, I am alone.
I am different. I've got extra bones.
Bumps on Me
Bumps on my arms, bumps around my knee
I want them to stop, but they can't
When you've got MHE
Bumps on my fingers, bumps on my legs
I want them to stop, but they can't
When you've got MHE
Bumps on my shoulders, they stick out like boulders
I want them to stop, but they can't
When you've got MHE
Bumps on my ribs, bumps on my back
There are so many I can't keep track
MHE, MHE
Why, oh, why does it have to be me?
BEFORE AND AFTER
(for Rachel and Conor)
I used to feel lonely.
I felt that there would be no gain.
I felt like a horse,
my bumps were the reins.
I felt down in the dumps
with these bony lumps.
Then a voice spoke to me...
It was my mom - she'd found someone with MHE!
Now I am happy. I hope this never ends.
Now I am so happy - now I have bumpy friends!
NO MORE GYM
No gym, no gym!
No running, no jumping,
no needing to swim.
I feel like Lady Luck's coming in.
No more gym, no more gym!
'TWAS THE NIGHT BEFORE SURGERY
A True Story...
'Twas the night before surgery sun setting down
Of course, at that moment, the car broke down!
I burst into tears, in total fear.
I said "This is not fine.
I will miss the midnight deadline!"
Three random people,
5 police cars (3 the same guy).
We called AAA, they're barely any help.
We were there almost the whole night!
We went in one police car,
then, at the end, we were home again.
It took three hours for them to come
I could feel my legs getting numb.
Broke down at 6,
got home at 11
We missed the whole night, we had not even packed!
We also missed dinner, a snuggle and a bath.
I don't know why the car had to break...
One thing for sure...
mom owes me a steak!
M.H.E IN MY FAMILY
There's M.H.E. in my family
Only it's not plain to see
Not my mom, not my dad, not my sissy
The M.H.E. is in me.
Back and legs
Uneasy
M.H.E.
Physical Therapy
You
Bony
Only one in the class with it
Number of operations
Exostoses
So many bumps....
Longing for a cure
I am not good at gym
Fear of an operation
Examinations
Waiting in a waiting room
I want to find a cure
The bumps bug me
Having to be alone
Many surgeries
Having physical therapy
Ending of pain
My staples are homes
from time to time
My bumps are mountains
for the people to climb
My scars are rivers
for the people to drink
I am a village,
That's what I think.
mheandme@yahoo.com
